Additional Resources
This section provides additional resources and information for working with Parkinson’s disease datasets.
Dataset-Specific Resources
AMP PD
PPMI
GP2
FOX INSIGHT
General Parkinson’s Disease Resources
Michael J. Fox Foundation
- MJFF Official Website
- MJFF Research Tools
- Research Community: researchcommunity@michaeljfox.org
Cloud Computing Platforms
- Terra Platform - Cloud platform for biomedical research
- Verily Viewpoint Workbench - GDPR-compliant analysis platform
- Google Cloud Platform - Backend infrastructure for AMP-PD and GP2
Key Publications
FOX INSIGHT
- Smolensky, L., Amondikar, N., Crawford, K. et al. Fox Insight collects online, longitudinal patient-reported outcomes and genetic data on Parkinson’s disease. Sci Data 7, 67 (2020). https://doi.org/10.1038/s41597-020-0401-2
Community and Support
Data Community of Practice
This guide is maintained by the Data Community of Practice, a collaborative effort to improve data accessibility and usability in Parkinson’s disease research.
Contributing to This Guide
We welcome contributions to keep this guide current and comprehensive!
If you would like to:
- Add information about a new dataset
- Update existing content
- Correct errors or outdated information
- Suggest improvements to the guide
Please contact: researchcommunity@michaeljfox.org
Technical Resources
Data Analysis Tools
- R Statistical Software: https://www.r-project.org/
- Python: https://www.python.org/
- Bioconductor: https://www.bioconductor.org/
- Jupyter Notebooks: https://jupyter.org/
Version Control and Collaboration
- GitHub: https://github.com/
- Git: https://git-scm.com/
Quarto Publishing
This web book was created using Quarto, an open-source scientific and technical publishing system.
- Quarto: https://quarto.org/
- Quarto Books: https://quarto.org/docs/books/
Citing This Guide
If you use this guide in your research or reference it in publications, please cite as:
Alosco, M., Hutchins, E., Saffie Awad, P., Dardov, V., Gottesman, J., Iwaki, H., Reyes-Perez, P., Teixeira dos Santos, D., & Sanghvi, M. (2024). Getting Started With Parkinson’s Disease Data (Version 1.0). Data Community of Practice, The Michael J. Fox Foundation for Parkinson’s Research.
License
This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
You are free to:
- Share — copy and redistribute the material in any medium or format
- Adapt — remix, transform, and build upon the material for any purpose, even commercially
Under the following terms:
- Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made
Acknowledgements
This guide was created with contributions from the Data Community of Practice and is powered by The Michael J. Fox Foundation for Parkinson’s Research.
We thank all the researchers, clinicians, and participants who contribute to these valuable datasets and make Parkinson’s disease research possible.
Version 1.0 | May 2024